Note: I was diagnosed with ADHD, finally, at the age of 27. Looking back on my experiences in school, work and in some of my social interactions, it is clear that ADHD was silently wreaking havoc on my life in so many different ways, but it wasn’t until I was finally diagnosed that everything finally started to make sense to me. ADHD is a vastly misunderstood disorder, and I hope that by sharing my experiences, I can help others understand how widespread the difficulties from ADHD can be, and help show how the disorder is more than just not being able to sit still and pay attention.
I was always a bit of a daydreamer, and from the time I was little, I would often drift off into my own world, and my parents would say that I was off in “La-la Land” (which, apparently, comes from people referring to celebrities in Los Angeles as being in their own worlds–bet you didn’t know that. If you did, I apologize for boring you with a fact you already knew. And with the sentence apologizing to you.) I always did well in school, for the most part, and was actually in the gifted program in both writing and math during my time in elementary school. I was a good student, who never needed to be disciplined all through middle school. The main comments on my report cards from teachers were along the lines of “Michael is so nice!” and “Michael is a sweet kid who is always willing to help others.” I would like to think that if I still got teacher comments on report cards (why don’t we get teacher comments on report cards in college? Wouldn’t that be fun?), they would probably be similar today. My overall disposition hasn’t much changed since the time I was young, but my ability to perform well in school did start to slowly decline in 7th grade. Therefore, it is unsurprising that there were no indications that I had ADHD when I was younger, especially since the disorder was not well understood during the early nineties, when I was in elementary school. Additionally, I was not hyperactive in any way, which is the way the disorder was primarily understood for quite a long time, although it is true that I was never able to sit still–in my case, however, this inability to sit still tended to express itself as a constant need to bounce my leg or tap my foot, as opposed to, say, climbing on top of my desk and playing leap frog with my neighbors’ desks.
The first time that I can actually remember struggling with any subject was in seventh grade, during my pre-algebra class, where the concepts involved began to get much more advanced and difficult to follow, and I struggled to keep up with the work that was required of me. Looking back at other assignments from seventh grade (my mom has saved things from every grade, Kindergarten through twelfth), I noticed that many of them were marked off for being one or two days late, or for being messy and hard to read. Eighth grade continued the trend of late assignments and struggling with certain subjects, especially Algebra, as I once again found it more and more difficult to understand the concepts that were presented to me. This was a little bit of a shock, as I had always been gifted in math, and had been able to do well until that point. In hindsight, it is not actually all that surprising, as one of the areas most affected in those with ADHD is working memory, which is a crucial ability when working on math problems and utilizing the proper formulas and equations. Additionally, as was the case the year before, I would turn in assignments late, and forget to do book responses or weekly journal assignments. It is quite possible that middle school, in general, is the worst time in any person’s life, so I am guessing that my parents and teachers just assumed that my struggles in a few areas were due to that horrible time when hormones are raging, social circles are constantly fluctuating, and our bodies are doing weird things that make us think: “Huh…that’s new!”
Knowing what I now know, it is not surprising that I started to struggle during this time period. It is quite common for those with ADHD to start facing serious difficulties with school work during middle school, as concepts become more advanced, and the workload becomes a little bit heavier. In addition, middle school tends to be the first time that students have more than one teacher in charge of everything, and instead begin to change rooms for each class period. All of these things make it hard for those of us with problems in executive functioning to perform as well as we used to in elementary school–more and more demands are being placed on us, and we suddenly find ourselves unable to get everything organized and taken care of like we used to be able to. Despite my few struggles in middle school, I did fairly well overall.
High school, however, was a different story, as I really began to deal with school work and schedules that were beyond my ability to handle effectively. I find it interesting that, for quite a while, I remembered myself as doing fairly well overall in high school, but when I recently looked back at my old report cards, I realized that this definitely wasn’t true. Despite graduating with an overall GPA of 2.9 (which, honestly, is far below my capabilities), my grades varied widely from class to class, and even from report card to report card. Much of this is unsurprising, as my depression and OCD began to get quite severe in 9th grade (see earlier blog post on OCD). However, with what is known today about ADHD and learning disabilities, the wide variation in my grades would most likely have been a red flag had I been a student even ten years later. A further barrier in getting properly diagnosed was the existence of my OCD. Whenever I couldn’t concentrate, or whenever I got distracted by something, and lost my focus of attention, everyone (including myself) just assumed it was because of my obsessions. The fact that I was not hyperactive in any way (aside from the constant restlessness that I felt), served to further the belief that my OCD was the primary factor in my difficulties. Add to that the struggles of coming to terms with my sexuality, and my depression, and it hasn’t hard to understand why I wasn’t exactly an A+ student.
Outside of middle school, the transition to college is possibly the most difficult one for those with ADHD, whether or not they have been diagnosed. People with ADHD are most able to succeed when they have structure, and entering the world of college tends to throw any previous structure that had been established right out the window. Add to this the lack of a parent or guardian constantly being on hand to help the individual get organized, and it is most certainly not the ideal environment for those with ADHD. While it is certainly also the case that many people struggle with adjusting to college, those with ADHD often find themselves floundering in a world that is completely overwhelming.
When I first attended college, the experience for me was always the same–I would start out really excited, sure that THIS would be the semester that I would succeed, but as the weeks went on, I would feel like I was standing in the middle of a downpour, and the water was slowly rising around me. I had no idea how I got in such a bad position, and I had no idea how to escape, so I just did what I could to avoid drowning, which usually entailed failing all but one class, or withdrawing from all of my classes towards the end of the semester. Every time, it caught me by surprise. Every time, I wanted to do better, and thought that I could do better, and every time it turned out the same. I started off well, I believed in myself, and then saw everything come crashing down around me as I found myself falling farther and farther behind, desperately wondering what was wrong with me, why I couldn’t seem to “get my act together” and start doing well. The amount of shame that I felt whenever I received an ‘F’ in a class, or whenever I would go and fill out the withdrawal form was enormous, and I would once again have to face the fact that, despite my intelligence, I seemed incapable of ever succeeding in an academic setting.
The hard thing about having ADHD, and going for so long without a proper diagnosis, is that the ways in which it shows up often appear as problems with your core personality, or as a willful disregard for things that need to be done. When you don’t do a homework assignment, people tend to assume that you didn’t do it because you didn’t want to, or because you made a conscious choice to have fun instead of doing work. Even when you tell people, in all honesty, that you forgot, they typically think you are making excuses for yourself, not believing that anyone could genuinely forget something like a paper or a homework assignment. When you forget to show up for a meeting, or forget to bring something that you promised a friend you would bring, and it happens repeatedly, people begin to think of you as unreliable, and begin to write you off as flaky, or someone who is always making promises they never intend to keep. It is incredibly painful to know that you did not mean to do anything wrong, to know that you would have done your homework, or that you would have followed through on your promise, if you had just remembered it, and to then have others criticize you because of their assumptions that it was all by conscious choice. It is even more painful when you start to believe that the negative evaluations of you are correct, and that you are, in some deep way, fundamentally flawed as a human being, unable to achieve like others do. When you are constantly trying, and are constantly coming up short, it doesn’t take long before you start to believe the bad things that others are saying about you. Undiagnosed ADHD brings so much shame, self-doubt, and self-hatred, that it is a miracle more of us make it as far as we do, with our hope intact, before being diagnosed.
Much of this lack of proper diagnosis comes from a fundamental misunderstanding about ADHD, and it tends to be those like myself, who are “ADHD–Primarily Inattentive Type”, who go the longest without being identified as having the disorder (women are also much less likely to be be properly diagnosed, thanks to outdated assumptions that ADHD is primarily a disorder found in boys). ADHD does not always manifest itself as the hyperactive kid who is unable to pay attention in class. It infuriates me when people talk about how ADHD is not an actual problem, and claim that we are just medicating kids who can’t sit still (and what kid CAN sit still, they say), pathologizing normal childhood behavior. This is not what ADHD is. As more research is being done, we are discovering that ADHD is, to use the definition utilized by ADHD expert Thomas Brown, “a complex syndrome of developmental impairments of executive functions” which are “the self-management system of the brain” that are “mostly unconscious operations.” Executive functioning includes areas such as working memory, the sustaining and shifting of attention, monitoring and self-regulating actions (impulse control), managing emotions, regulating alertness, and activating motivation. In other words, those with ADHD do not just have the inability to sit still; we have the inability to properly manage our cognitive processes in a way that those without ADHD can. Look at all of the different areas that are under this domain, and think about how a problem with these areas would affect your life in a negative way. All of the executive functions are crucial for success in all different areas of life, and it is not just about not paying attention in class, or not being able to sit still. Additionally, when the diagnosis is properly made, people are compared to those of their age group. Again, there is a difference between having a problem sitting still for a couple of hours, and being unable to control the need to get up and run around the room, or to blurt out whatever comes to mind, without the proper use of filters appropriate to one’s age group.
The diagnosis of ADHD changed my life in ways that I can’t even describe. There are those, both in and out of the psychological community, who believe that the whole idea of diagnosing individuals is stigmatizing and problematic. While I certainly agree that this CAN be the case, if it is not properly done, it is also the case that having a proper diagnosis can be a huge relief, and is often the first step towards understanding that you, as a person, are not flawed. What is flawed is your ability to utilize your executive functioning in ways that other people take for granted.
There are certainly funny things that have happened as a result of my ADHD, and one of my favorite things to do is talk to other people with ADHD and share stories of these experiences. One time, for example, I put water on to boil, and then went to the other room to grab something. Fifteen minutes later, I suddenly thought, “oh shit! my water!” and ran to the kitchen, finding that the pot had boiled dry. I started again, put the water on to boil, and then went to the other room to do something quickly. Once again, fifteen minutes later, I thought “oh shit! my water!” and ran back to once again find that the pot had boiled dry. The third time, I decided to not leave the kitchen until the water had boiled, and until the eggs I was making were fully hard-boiled. There have been more times than I care to admit that I have left the house, realized I have forgotten something, gone back into the house to get it, and then left the house again, only to realize that I still didn’t have the thing that I had originally forgotten.
One of my favorite “ADHD moment” stories comes from one of my friends, who drove to the grocery store to pick something up for her mom. While there, she noticed that a store next door was hiring, so decided to run in and grab an application. After leaving with the application, she walked home–forgetting that she had driven to the grocery store. Needless to say, she also did not pick up the item that had originally led her to the store to begin with.
While these stories are always funny in hindsight, there is usually an underlying pain to them, especially for those who are undiagnosed, or who are just learning about what it means to have ADHD. Whenever something like this happens, your first thought is often “what is wrong with me? Why am I so forgetful? How can I be so stupid as to forget that I had put a pot on to boil, not just once, but on two successive occasions?” If something like this happens once or twice, it is easy to laugh off. When these types of things happen every single day, and start to become part of who you are, you start to doubt your ability to be a fully functioning, productive member of society. It is even worse when you interact with others who start to use these types of behaviors against you as signs of your inherently flawed nature. “You are such a slob!” “You are so thoughtless!” “How could you possible forget something like that? What is wrong with you?” “You’re so weird!” “Why can’t you ever do anything on time?” These types of statements have probably been heard over and over again by almost every single person with ADHD, and it never gets easier to hear them.
Over and over, when I was younger, I would be reprimanded for not cleaning up my dishes, or for not picking my towel up off of the floor, or for not putting away the things I had used to make lunch earlier that day. I would often have to be told several times before I remembered to follow through with whatever I had not done. And, honestly, I had to be asked again because I had completely forgotten that I had been asked before, and only remembered that I had been asked when someone asked me again (or yelled at me, or made a sarcastic comment to me about it). I could not understand why people were so mad, when I had honestly forgotten, and it hurt to be yelled at for something I had no knowledge of doing wrong. But, once again, when you say “I forgot!”, people tend to think that you are just making excuses, and tell you that you are just being lazy or selfish. It’s one thing to be called a slob if you are a slob because you simply don’t want to clean, and don’t care about the cleanliness level of your house. It is an entirely different thing to be called a slob when you don’t clean because you have no idea how, or because you get overwhelmed whenever you try. Or when you get called a slob because your house isn’t clean, even though you really want to, but every time you start cleaning, you get distracted by an article you pick up, which reminds you of a book that needs to be returned to the library, which reminds you that you need to go the store, which reminds you that you need to get gas. Every time each of these things pops into your mind, you set off to complete that task, whether or not the previous one had been finished, because you have completely forgotten that you were doing something else that needed to be done, until you run out of gas on the way home to a dirty house, where an overdue library book is still sitting by the door, without the item you needed from the store. Eventually, others no longer have to do the criticizing, and you become your harshest critic–after all, if you are the hardest on yourself, maybe it won’t hurt so much when others are hard on you, too.
Despite everything that I have had to deal with, I am in no way saying that I would get rid of my ADHD if I could. In fact, I think that my ADHD has been a valuable part in making me who I am. I doubt that I would have the sense of humor that I do, or the ability to empathize with others as well as I do, for example, if I did not have ADHD. However, I sometimes can’t help but wonder how things might have been different if I had been diagnosed earlier. At the same time, I recognize that I wouldn’t be where I am, surrounded by such amazing people, in an area I love, if I was able to succeed in my first attempt at college. It would have been nice, however, to have been a little less bruised by the time I got here.
What I have gained, from my own experiences with ADHD, and from the experiences of so many others, is a passion and a drive to help adults with ADHD rebuild the lives that have so frequently shattered around them. The following two quotes are from individuals who post to an ADHD message board that I participate in, and are, unfortunately, quite representative of the experiences of so many people in that community:
“I grew up thinking that I am rude, inconsiderate, and just plain dumb for not being able to achieve such a “simple” task like getting somewhere on time…My whole life I have felt different than everyone. I have always felt like I have a different view of the world. I feel like no one understands me. I feel like I am screaming , trying to get people to understand what I go through on a daily basis, but I feel like no words are coming out.”
“I guess I have no one in my life that understands me , divorced, depressed, alone litteraly , unemployed business owner, addict, is this starting to sound like an ok cupid profile or what? Just here looking for an outlet , im at such a screwed up point in my life. I have no idea what to do.”
Every time I read posts like those, it reminds me that therapists who specialize in working with adults with ADHD are desperately needed. It breaks my heart to know that the vast majority of these individuals are good people, who are often very intelligent, but who have struggled their whole life to succeed because of their ADHD, and who have no idea how to makes things better. These types of stories are what keep me going when I have doubts about the career path I have chosen, or during the times when I feel overwhelmed by grad school. I want to do everything I can to help these people understand that things can get better, that they can learn to love themselves, and that they are not broken human beings beyond hope.

